One point of fun news today (it's the little things) is that his feeding tube is now in his nose instead of his mouth so you can see his cute little chin! Complete with a very large cleft. Check it out!
Monday, April 26, 2010
Two-Stepping
Oh the reality of "two steps forward, one step back." It really is so true. Frustratingly true. Leo's still doing fine, but today's "step back" came in the form of a test they're doing for a virus that attacks the liver and could be an explanation for his continued elevated billirubin levels - the toxins that keep his color looking a bit off. They don't know if he has it, they're just testing him. If he has it, he could've gotten it from almost anywhere as it's a pretty common thing floating around out there. Could've been from my milk, could've gotten it in the womb, could've happened after he was born. Who knows. But for now it's just a test. And I need to not go set up camp in the "oh my god he has something else wrong with him, when will this stop?!" place that I sometimes go visit for too long. This is only a test.
One point of fun news today (it's the little things) is that his feeding tube is now in his nose instead of his mouth so you can see his cute little chin! Complete with a very large cleft. Check it out!
One point of fun news today (it's the little things) is that his feeding tube is now in his nose instead of his mouth so you can see his cute little chin! Complete with a very large cleft. Check it out!
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He is really starting to look like a little man! Go Leo!!
ReplyDeleteWow, what a cleft! Such a sweet little mouth and chin, so happy to see them. Seems to be putting on some face chub too. A growing boy is a wonderful thing.
ReplyDeleteHolding you up in prayer Caitlin, the Bible tells us that we aren't to worry but to trust God for health and healing and to thank Him for these blessings. We trust that Leo will be issued a clean bill of health as his doctors discover everything that needs to be addressed and he will be whole, healthy and robust as he develops further. We are very thankful for those doctors who have sheltered Leo and you from the many complications that arise under these circumstances. I stand with you on positive ground with all my support for peace and rest as you make your way down this road with many turns. Big hugs,lots of love and positive energy to you, Leo and Jay XO